Blinded By The Light

So, I woke up around 4 this morning and have been in one of those introspective, thinking mood...Ahh, it never stops. lol. But I wanted to share something because it's just an issue I haven't discussed much. Actually, I don't give it a great deal of thought - unless I forget my sunglasses on a bright day.But, I just felt like it for some reason.

For those of you who don't know, over the Summer, I was diagnosed with a rare, genetic eye disease called Choroideremia. It's gender linked and is generally a male-only disease. Females are carriers of the gene, but only if they're first-born. The first-born son of a carrier or someone who has it will have the disease, first-born daughter will only carry. If a female carrier gives birth to a girl first, it breaks the chain in the family and that's the end of it. My dad has the disease and it's lead to lack of his peripheral vision (permanent tunnel vision, basically) and he's night blind. Once it gets dark, he can't see. Extreme light sensitivity is also a sympton. That's the only eye issue I've ever had is a very severe and somewhat painful sensitivity to bright lights.
I'd never had my eyes checked before, so I finally went to the eye doctor over the Summer. In over 40 years, the doctor had only ever seen two cases of Choroideremia, my dad being one. He checked my eyes and I went out to wait for the drops to wear off. As I did this, he called my mom back to talk to her. After a few minutes, he called me in. He sat me down and gave me the rundown of what was up with my eyes. But, I thought he was just telling me I carried it, which I figured. I didn't get it at the time. We got in the car and my mom turned around and said "You know what he was trying to tell you, right?" and I said "Yeah, that I'm a carrier." and she said "No, you have it." Which lead my little brother to nearly wreck his car. We were dumbfounded. There should be no possible way that I should have this disease, but, it happened. I started crying because I was afraid. Having seen what my dad has suffered with all these years, I had good reason. I needed more testing and photos done, but he was pretty certain.

If any of you have seen the odd looking orange photos of my eyes, the dark spots are an indication of the disease. I already have a thickening, but my vision is perfect. The pictures told him for certain that I had this disease. He said they looked just like my dad's. My mom and dad's mom were there with me and both started crying. Grandma was just devestated because she seems to feel guilty in all this. Of course, that isn't the case. The doctor hated having to tell the news. I cried for a second and then said "Well, y'all know I can't do anything halfway." Hahaha, Grandma smacked my leg for making jokes. That's my coping mechanism. It wasn't all bad that day, I got chocolate :) lol.

I'm blessed to have good vision but am preparing because it may not always be the case. But I'm hopeful. Ha, like I said, this is further proof I can't do anything half-assed. Go big or go home, I guess. I choose to take the diagnosis with hope and humor. Hell, what can I do about it? Not a thing. There's no cure right now and very little is known about it. But the way medicine is advancing these days, I'm not going to worry over it. It's all the more reason to see the beautiful things in life. We must learn to accept the things we cannot change. I'm thankful to be ahead of the curve on this. I've come to feel that, although it's hard to swallow, it's not worth crying over. Tears are only going to blind me and I won't let them or this disease take my sight from me.

I Want...

I want to act. To be a famous movie actress one of these days. If it were up to me, I'd be one already. One of those child stars. lol. But, it never played out that way and I accept it.


I want to get married and have at least two children; One girl and 1 boy.


I plan to live in Texas for a little while, at least. Or make it my permanent residence with time spent wherever my work may lead me, naturally.


Hopefully I'll be on Oprah someday. lol. I loove Oprah. And I'd love to win an Oscar. That's one of my biggest dreams.


I love singing and dancing, so I'd like to have a career as a singer as well. Does that sound too ambitious? haha, Some people have done it and done it successfully, I'd like to be one of them...maybe win a Grammy award. lol, Dream big or not at all.


I'm planning, as of right now, to start school in the Spring at OU where there's a good theatre program. I'm kind of excited. I'm moving to Texas in a couple of years, Corpus Christi or maybe Dallas. I have a lot of family down that way and I've never been there.

I want to finally start having a real life. I kind of did for a while and then things got away from me for this reason and that reason. I want to have this feeling back that there's someone out there who gives a damn about me. I was almost happy for a while. I had freedom. I've yet again allowed myself to become my own prisoner and that's the most confining prison to live in.

I want to love again. To love like I was never hurt. I believe in love. How can it not exist? Look around and you're sure to find it somewhere. I know who I want, it's just a matter of positive thinking right now...I'm lacking in that area, but I know I can do this. I believe. But, love is a whole 'nother story entirely and that's far too ambitious a writing project for me right now. lol.

There are so many things I want to do. So many things I want out of this life and I just hope I can do it all and do it all well. But most of all, in addition to love, I just want to be happy. I don't know that I ever have truly been happy in my life and that is my greatest dream of all. To be happy and to find love. Those are the only two things we really need in the very end...<3

It's Never Enough

So, I haven't written in a while and I can't sleep. Emotionally, I'm a bit spent, and I can't sleep. I just need to vent.

All I want is to believe you still truly care about me without expecting anything from me. I found out some rather distressing information the other day and on one hand, I'm so upset and on the other, I almost don't care. But I miss someone more than words can say. I wish I didn't, but I do. I care far too much and have invested more of myself than I ever should have. But you can't fight what your heart wants and how it feels. I know why they call it heartache. It's a very literal term. I think if my heart could cry, that's just how it would feel. The pain is almost unbearable and I want to cry, but I'm just not able to. My heart is sad and heavy and I want it to have that lightness again. Oh, how I'd love that. I think I fell somewhere along the line and nobody was there to keep holding me up.

God, when I'm in your arms, it's the most peaceful feeling in the world. Two people at peace, not needing to speak. There's a knowing-ness in that embrace that I love and I miss. Have you ever needed someone so bad? It means everything to me to be called "special" and know someone actually means it. Looks you dead in the eye and tells you how special you are and that you were missed. Am I less special now? Am I not missed so much? Maybe I did something wrong, I don't know. I know I maybe made a mistake by falling, but you're as much in the wrong for expecting me not to.

The heart wants what the heart wants. I know what it wants and I'm at a loss. To want something you know you can easily have but for it to be so somehow out of reach is maddening. It's one of the most sinking, soul-crushing feelings. I can't get you off of my mind. I haven't been able to in ages. I'd love to, but it seems impossible. The "special lady" fell for an even more special man and he's slipped so far from her fingers....Now I can cry.

Sorry, I just needed to get some things off my chest.

A Drop In The Ocean

Sooo, I wrote this and I'm not sure that it's any good, really. But there's a bit of truth behind it. I can't say I've never felt this way before. Or that I don't to a point right now. Anyway, enjoy.

Being with you....Things are so simple. The rest of the world doesn't exist. It's just the two of us, and there, there is where I find perfection. It's quiet, it's sweet. There's always beauty in anything that's honest and true. If it's real, it's lovely. There's something special in those moments. The moments we just look into each others' eyes and say nothing at all. In the moments one of us says something stupid, but the other just laughs because only we would get it. In the moments where our minds are on the same page and there is total understanding...In that, there is nothing but beauty. I see truthfulness and serenity in your eyes and I'm at ease. I'm happy.

But on the other side of it all, you find that beautiful things never last. I wonder every moment of the days that so slowly pass by, "Why not me??" And each second is like sand falling down the hour glass grain by grain. Each grain as slow and painful as the last. The butterflies in my stomach run rampant in confusion and hurt. Pain in my heart over the one soul who sets it on fire....Why not me? Don't let the perfect person for you slip through your fingers. Don't be willing to let yourself let go of something special.

Oh, How I Adore This Song

Heartfelt Lies - Ron Pope

I walk by the river's edge

Skipping smooth wet stones

& watching them sink

I never was a fan of innocence

I've got two black eyes

& an empty fifth of gin

& I see I'm wrong for you

But we tried

You swear im hard to lay beside

If I was you i'd run from me most nights

Maybe I was meant to be left behind

Thundering circumstances

Beyond our control rumble in

Counting time by the lines 'round your eyes

As your gentle caress helps me forget

& I think it's time to say good night

& you swear im hard to lay beside

Now years seem to pass as we blink our eyes

Maybe I was meant to be left behind

But all of our heartfelt lies

All of our heartfelt lies (x2)

Are not enough this time

& I say I'd love to spend the night

But you found someone else to lay beside

& I know it makes sense

But it's like sand in my eyes

Maybe I was meant to be left behind

I absolutely, positively love this song. It's very mellow, but I just adore it. It's sad, though. Most of the time, it actually makes me cry. But that's mainly because, right now more than ever, I feel every word of that song. I feel it deeply. It's so beautiful and so relateable. He's actually quite a good artist whom I'd reccomend any day. "A Drop In The Ocean" is another good song of his.

An Ulcer Waiting To Happen

It really is a wonder to me that I have never had an ulcer. I have the most nervous stomach & I stress over stupid things. I have that overly-worried, stressed out feeling and I don't have a clue in the world why. But it's killing me and I do not feel good at all. It drives me crazy. I cannot figure it out. Nothing's going on, so I don't have a reason to worry or stress over anything, but just...BLECKK!! I feel like crap! lol. Not cool. I don't think it helps any that the weather is changing, I have terrible sinuses, and I didn't sleep worth a darn last night. I've been up since 6 for no real reason other than I couldn't sleep. I'm the most horrible insomniac you could ever imagine. Seriously. I think I'm gonna go try to lay down for a while and write more later.

xoxoxo

Happy Birthday, Michael

So, today would have been Michael Jackson's 51st birthday. His death has officially been ruled a homicide and I can't tell you how angry that makes me or how much it breaks my heart. I loved Michael more than I can say. He's my favorite singer and always has been. I had his music in times when I had nothing else in the world. I had his words to bring me comfort and a sense of being understood at times when I was lost, hurt and alone. His music provided me with a much-needed escape from life when life wasn't worth it; A light in dark times. And for all he's done for me, for how he's made me feel, I will love and treasure him always. May you finally be at peace, Michael. Happy Birthday.

All In A Day

Gosh, I'm freaking sore!! Uckk. lol. I got up early and walked this morning, but didn't do my other exercises. I hurt and figured "screw it." Plus, it's hot and humid today and a bit stuffy in the house. I guess a day off won't kill me. It may be detrimental to other parts of my body, but it's not altogether damaging.

Ahh, anyway...I have come to discover that at any point, during any day and on almost any channel, you will find that The Golden Girls are on. lol. I've spent half a day before, watching them. I love that show! I know I've seen nearly every episode 150 times, but I love it. Seriously, it is always on.

I need to get my other pictures hung up. Marilyn Monroe pictures. I looove her. She's my idol and has been since I was just a little girl. I always wanted to be her. I think she's a big part of why I've wanted to be an actress since I was 2. Or a "movie star." lol. I definitely want to be her for Halloween. I've wanted to be for the past few years, but something always comes up. Two years in a row I was really sick =/ Go figure, right?

I guess most of the time, my life is pretty boring. Maybe one day before long I'll have more to write about, it all just greatly depends on the day, as I'm sure you all know. I'm considering college, but it was just never where my heart was, so I don't know. My eye doctor told me last week that I had an eye disease called "Choroideremia." My dad has it and it night blind and has no peripheral vision as a result. But the thing about this disease is, A) It's incredibly rare and B) It's dependent on the gender of the first born child. It's only a male disease, typically, and females are just carriers. But, I have it somehow. It will likely never be as severe as my dad has it, but there's no way to tell how it will progress, so I need to have my eyes photographed every 6 months. How fun. But he said furthering my education wouldn't hurt and the school I'm considering isn't far and has an excellent theater program. Plus, it's a great town that I adore and full of hippies!! lmao. I love it<33>

Have you ever had someone in your life who not just gave you butterflies, but made them go crazy and set your heart on fire?...Just curious. Well, okay, I just don't wanna talk about it. ha.

I guess that's about all I have to say for now. More later!!

xoxoxox

Firsties

Ooh, first blog! Most exciting. I haven't written one really worth reading for a while. But I've always blogged on MySpace. I now have another outlet! Thank you, CJ lovee!!<33 He's such a little dear.

Oh my gosh! I'm so sore! My legs, back, arms, abs...I've been working out the past couple of days and the moves I do hurt like crazy. lol. I've been walking in the morning to loosen the tension and then dancing later when I regain my mobility. Oh, I tell you, the things we females do, right? It's insane!! But I guess I don't get called "Barbie" for looking like total crap...even though I do most days. lol. But shhhhhh! We'll keep that our secret ;)

Hmmmm, well, I think I probably ought to get off here now. But I wanted a sign-in blog and I will most definitely return soon!

Goodnight && sweet dreams to all.
BIG HUGS & KISSES xoxoxoxox
Muah!! ~Arielle